Yesterday I realised I couldn't travel the 4 hours on a train to see my boyfriend anymore. Almost everytime I travel I end up being ill usually just with a cold but having a cold makes my joints hurt more and makes them dislocate more because I don't have as much energy so fail big time with trying to keep everything in joint. Also my hips have got a bit worse everytime I've travelled which I've stubbornly being ignoring because I want to see my boyfriend. My pelvis is now punishing me, it's falling apart often and sitting hurts far too much for me to manage to sit on a train for 4 hours.
So today I'm angry because my EDS may well destroy my relationship. I can't travel there until my pelvis settles down. I'm contacting the shoulder specialist tomorrow in the hope he'll put me back on the waiting list now that the weird stuff with my heart has stopped and so I won't be visiting my boyfriend again until after I've had the shoulder operation and recovered enough to travel.
I'm hoping he will come and visit me but he hasn't done so far and is very anxious about travelling. He also has a mental illness and is worried that he'll be ill whilst he's here. So I'm not sure whether he will manage to come and stay here or not.
If he doesn't then I think it will depend how long it is until I can travel again and visit him as to whether things will be ok with us or whether we'll just drift apart
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