Sunday, 7 February 2010

Introducing me bendy rebel

Ok this is my first attempt at a blog and my life isn't very interesting but even if no one other than me ever reads this blog hopefully in a year or two I'll be able to look back on what my life was like and think "wow my life was rubbish then, it's much better now!" For the sake of anyone who does read this blog I'll tell you a bit about myself. So here goes:

I'm a 23 year old woman, no not a lady, most definately NOT a lady just a woman

I have 2 dogs which for the sake of anonimity (incase I say anthing against any relatives and they come across this hopefully they won't realise it's me lol) I will call the oldest Terror as she is a terror and the youngest Naughty because she seems to think thats her name anyway!

I am disabled and am on incapacity benefit and disability living allowance and no I am not one of the thousands of fraudsters that the government would have you believe their is claiming such benefits

I have ehlers danlos syndrome hypermobility type which is a connective tissue disorder. I am in pain all the time and have been for many years and most of my joints sublux or dislocate quite regularly and I am now taking morphine to keep the pain at a bearable level

I am addicted to cross stitching and quite possibly morphine! Oh and chocolate too of course

Well their'll be more later today or tomorrow I'm not sure yet what about. Possibly how many dislocations I've had and what stupid ways I did them. Or maybe about the 'wonderful' benefits system. I also have alot to say about the 'wonderful' NHS

The aim of this blog if anyone reads it is to bring more awareness of ehlers danlos syndrome (EDS) and hypermobility syndrome (HMS), hypermobility syndrome is at least very similar to the hypermobility type of EDS and might be the same thing. Many people go undiagnosed for years. I also would like to make people more aware of what life with a disability is like, how difficult things that seem so simple to others can be for those with a disability and also just how many inaccessible places there are even now in 2010 but most of all it's just going to be my story, my experiences, my life which is at the moment rather boring

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